GENERAL SUMMARY/ OVERVIEW STATEMENT:


Receiving general direction from the Principal Investigator, the Sr. Clinical Research Coordinator will lead a clinical research project on the natural history of Alternating Hemiplegia of Childhood, including the systematic collection of clinical data and biological specimens. The position requires the ability to analyze data independently and make improvements on data collection.


PRINCIPAL DUTIES AND RESPONSIBILITIES:


Conduct human subjects research following all ethical guidelines.


Establish data collection protocol.


Establish written operations manual for collection of data and biospecimens.


Conduct systematic neurologic exams on children with Alternating Hemiplegia of Childhood and their family members.


Collect blood, saliva and urine samples from participants.


Supervise proper handling and storage of biospecimens.


Supervise data entry and procedure for data verification and 'cleaning' (data quality control).


Analyze data and utilize results to improve on data collection protocol


Present data at scientific meetings


Write and edit manuscripts, serving as first author, for submission to neurology journals.


Other duties as assigned.



Qualifications

SKILLS & COMPETENCIES REQUIRED:


Training in child neurology and movement disorders


Training in clinical research methods


Training in clinical operations, to facilitate the establishment of this program while working fairly independently.


Discretion and Confidentiality: Ability to handle sensitive and confidential matters discreetly and to ensure confidentiality guidelines are maintained by team.


Critical Thinking/Decision Making: Ability to appropriately evaluate all aspects of a situation and to independently make appropriate and timely decisions.


Interpersonal/communication: Excellent interpersonal/communications skills and a good command of English language, including medical and scientific terminology.


Information Systems/Technology Skills: Exceptional computer skills (including operating systems, word processing, database, electronic mail, and Internet).


Safety/Compliance: Knowledge in all aspects of laboratory safety and ability to ensure a safe environment for laboratory staff and subjects.


EDUCATION:


Bachelor's Degree required.


EXPERIENCE:


Minimum of 3-5 years of directly related experience.


SUPERVISORY RESPONSIBILITY:


Direct: The individual will supervise a clinical research coordinator, for approximately 50% of the coordinator's effort.


WORKING CONDITIONS:


The work is performed via combination of in-person research visits and internet-based research visits. The work includes collection and handling of blood samples. The work can be done in a hybrid manner, split between the office or clinic space and internet-based work.



EEO Statement

Massachusetts General Hospital is an Equal Opportunity Employer. By embracing diverse skills, perspectives and ideas, we choose to lead. Applications from protected veterans and individuals with disabilities are strongly encouraged.