BSD NSU - Research - Margaret Hackett Family Program
About the Department
Established in 2018 within the Department of Neurological Surgery, the Margaret Hackett Family Program in CNS Congenital Anomalies at the University of Chicago (MHFP or the 'Program') was created to make a difference by supporting research, patient care, and education initiatives focused on improving the lives of people impacted by congenital anomalies of the central nervous system. The Program's initiatives include: 1) Providing more complete information leading to a better understanding of congenital anomalies of the central nervous system, 2) Ensuring that patients and families have access to information about the latest treatment options, 3) Advancing collaborative, multi-institutional research that will improve treatment and enhance the quality of life for patients, and 4) Providing compassionate, understanding, and engaged communities for patients and their families. The MHFP at the University of Chicago is supported by the Margaret Hackett Family Center (or the 'Foundation'). The three pillars of the MHFP are 1) Patient-focused outreach and support, 2) Clinical research, and 3) Basic science/laboratory research.
Job Summary
The job provides specialized business support for the Margaret Hackett Family Program (MHFP), which includes direct support to patients and families diagnosed with CNS Anomalies (Chiari, Craniosynostosis, Hydrocephalus, Syringomyelia, Spina Bifida) to create awareness of the MHFP while helping patients and families navigate the healthcare system, create and maintain support groups, and develop educational resources.
Responsibilities
Develops communication and marketing plan with Program Manager to promote MHFP including email campaign, newsletter distribution, and social media posts.
Develops and expands Clinical Outreach Program to expand MHFP presence with Program Manager.
Promotes MHFP to local Chicagoland clinics and hospitals. Networks to build relationships with local providers and administrators. Conducts virtual and in-person presentations to inform local providers about MHFP resources.
Endorses MHFP resources at medical conferences/meetings in Chicagoland area.
Networks to find local medical conferences/meetings with CNS anomaly providers.
Attends local conferences/meetings to connect with providers and inform about MHFP opportunities.
Creates Connect Groups for patients and families with CNS anomalies that meet in-person and/or virtually.
Recruits and trains volunteers to form Connect Group for patients and families with CNS Anomalies.
Assists with administration and logistics of educational conferences and events.
Coordinates patient and family events to connect families and offer MHFP resources.
Responds to requests received from patients, their caregivers and medical professionals for information and support in dealing with the challenges of CNS Anomalies.
Collaborates with physicians and clinical professionals in the patient triage process, respond to patient requests and/or inquiries.
Creates educational guides and handouts as needed for patients and families to navigate resources.
Supports the delivery of services to program participants and/or beneficiaries.
Coordinates quality assurance reviews and recommends changes as appropriate.
Maintains program budgets and recommends or makes budgetary recommendations.
May interact with faculty, researchers and staff for committee work or information.
Performs other related work as needed.
Minimum Qualifications
Education:
Minimum requirements include vocational training, apprenticeships or the equivalent experience in related field (not typically required to have a four-year degree).
--- Work Experience:
Minimum requirements include knowledge and skills developed through 5-7 years of work experience in a related job discipline.
--- Certifications:
---
Preferred Qualifications
Education:
Bachelor's Degree.
Preferred Competencies
Familiarity with central administration within a complex research university environment.
Excellent oral and written communication skills.
Excellent interpersonal and customer service skills.
Handle sensitive and confidential situations and information with absolute discretion.
Maintain calm and courteous demeanor and to work productively despite heavy workload, competing priorities, complex problems, and tight deadlines.
Excellent problem-solving skills.
Ability to use appropriate resources to resolve an issue.
Ability to follow an issue through to resolution.
Considerable skill in working both independently and as a team member.
Ability to take initiative and organize and complete projects with minimal supervision.
Application Documents
Resume (required)
Cover Letter (required)
When applying, the document(s) MUSTbe uploaded via the My Experience page, in the section titled Application Documents of the application.
Job Family
Administration & Management
Role Impact
Individual Contributor
FLSA Status
Non-Exempt
Pay Frequency
Biweekly
Scheduled Weekly Hours
40
Benefits Eligible
Yes
Drug Test Required
No
Health Screen Required
No
Motor Vehicle Record Inquiry Required
No
Posting Statement
The University of Chicago is an Affirmative Action/Equal Opportunity/Disabled/Veterans and does not discriminate on the basis of race, color, religion, sex, sexual orientation, gender, gender identity, national or ethnic origin, age, status as an individual with a disability, military or veteran status, genetic information, or other protected classes under the law. For additional information please see the University's Notice of Nondiscrimination.
Staff Job seekers in need of a reasonable accommodation to complete the application process should call 773-702-5800 or submit a request via Applicant Inquiry Form.
We seek a diverse pool of applicants who wish to join an academic community that places the highest value on rigorous inquiry and encourages a diversity of perspectives, experiences, groups of individuals, and ideas to inform and stimulate intellectual challenge, engagement, and exchange.
All offers of employment are contingent upon a background check that includes a review of conviction history. A conviction does not automatically preclude University employment. Rather, the University considers conviction information on a case-by-case basis and assesses the nature of the offense, the circumstances surrounding it, the proximity in time of the conviction, and its relevance to the position.
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